Web Survey Bibliography
Objective: To assess validity of a self-administered web-based migraine-questionnaire in diagnosing migraine aura for the use of epidemiological and genetic studies.
Methods: Self-reported migraineurs enrolled via the LUMINA website and completed a web-based questionnaire on headache and aura symptoms, after fulfilling screening criteria. Diagnoses were calculated using an algorithm based on the International Classification of Headache Disorders (ICHD-2), and semi-structured telephone-interviews were performed for final diagnoses. Logistic regression generated a prediction rule for aura. Algorithm-based diagnoses and predicted diagnoses were subsequently compared to the interview-derived diagnoses.
Results: In 1 year, we recruited 2397 migraineurs, of which 1067 were included in the validation. A seven-question subset provided higher sensitivity (86% vs. 45%), slightly lower specificity (75% vs. 95%), and similar positive predictive value (86% vs. 88%) in assessing aura when comparing with the ICHD-2-based algorithm.
Conclusions: This questionnaire is accurate and reliable in diagnosing migraine aura among self-reported migraineurs and enables detection of more aura cases with low false-positive rate.
Sage Journals Online database (full text)/(abstract)
Web survey bibliography - Edwards, B. (2)
- Validation of the web-based LUMINA questionnaire for recruiting large cohorts of migraineurs; 2011; van Oosterhout, W. P. J., Weller, C. M., Stam, A. H., Stijnen, T., Ferrari, M. D., Terwindt, G. M.
- Computer-Assisted Audio Recording (CARI): Repurposing a Tool for Evaluating Comparative Instrument Design...; 2009; Edwards, B., Hicks, W., Tourangeau, K., Harris-Kojetin, L., Moss, A.